Join Our Boys Trust is appealing to the public, employers, and businesses all over Ireland to join together to help raise €300,000 to get the Naughton family into their home for Christmas.
On what is traditionally one of the biggest Christmas shopping days of the year – 8 December – the Join Our Boys Trust is on a quest to get a family whose three sons have a devastating muscular disorder into their home for Christmas.
Roscommon mum Paula Naughton is appealing for public support as she and her husband Padraic build a purpose-built home for their three sons Archie, George, and Isaac.
“DMD is a catastrophic muscle-wasting disease which will eventually impact on the boys’ ability to walk, use their limbs, or even hug the people they love”
In 2012, when Archie was sux and the twins George and Isaac were two and a half, all 3 boys were diagnosed with Duchenne Muscular Dystrophy (DMD).
Duchenne Muscular Dystrophy
DMD is a catastrophic muscle-wasting disease which will eventually impact on the boys’ ability to walk, use their limbs, or even hug the people they love.
Those who live until their late teens are likely to become totally paralysed and will eventually die of respiratory and or heart failure. Archie, George, and Isaac are all paralysed and in wheelchairs. They are now struggling to use their arms
The Join Our Boys Trust was set up in 2014 following a conversation with a consultant in Temple Street Children’s Hospital who advised the family to “go home and love their children.”
The Trust aims to raise the funding it needs to design and build a purpose-built house tht will accommodate Archie, George and Isaac for as long as they require it, and also to fund research into finding a cure for DMD.
Since the Join Our Boys Trust was established, enough money has been raised to build the house, which is in Roscommon Town, Co. Roscommon.
However, an additional €300,000 is required to ensure the house is fully kitted out with the equipment needed to ensure the boys’ complex needs are adequately met. This includes a ceiling hoist, automated doors, specialised beds, a therapy area, specialist IT equipment, specialist toilets, landscaping, a road and many other things. The family also needs to fund the on-going running costs of the property.
The house will belong to the Join Our Boys Trust and not the Naughton family.
Everyone can help Archie, George, and Isaac and their mum and dad get into their home by Christmas by donating at https://joinourboys.org/donate/.
Main image: George, Santa, Archie and Isaac